Friday, March 27, 2009

Stellan updates

I have been emailing with Jennifer and following her on twitter- for those of you who may not, and want to, all you have to do is go to www.mycharmingkids.net and then on the left side you will see her "twittering" and you can choose to follow.

I wanted to post here in the event that you aren't seeing those because I feel like today has the potential to be a turning point day, and I would love for you all to pray. Stellan is (as I type) going to have a procedure where they adjust the way that they have been treating him. They may be putting in a central line, but they won't know until after he is done. Everyone I have asked has suggested that this is probably the most efficient way to get him what he needs, but everyone has an opinion, and that makes it SO HARD to know what to do as a mother. TRUST me, I know.

Jennifer has a strong sense of the Holy Spirit, and has spoken her mind a little more today, and I really think she is really on the right track....it is so frustrating to see your child suffering.

SO.

If you are reading this, please pray for wisdom for Stellan's doctors and for Jennifer. Please pray that Stellan's procedure goes well (it is more complicated than the others they have done), and that he comes out of SVT soon.

And if you want to read all of the more advanced details, go to her blog.

I think she should be given an honorary M.D. after all of this.

Do they do that?

OK. GO PRAY!!!!

A

74 comments:

anglswngs said...

Praying as always for baby Stellan!

Lisa said...

Wow, I have NEVER been just #2 commenting, but now I realize DUH, it's because everyone is either (a) praying like they should be or (b) over on Jennifer's blog getting the details. I agree this is going to be a turning point day, I love Jennifer's spunk and going to continue praying now!

mg said...

I've been following Stellan since I first saw mention of him on your blog. Thank you for calling in the warriors to pray! Do you know if or how a Facebook Group can be created for Stellan. I know there is one for baby Jonah (http://patriceandmattwilliams.blogspot.com/)and it has been a great way to spread the word...

Emily said...

Praying as we speak that the Lord will give wisdom to those doctors and that the medical team will have a smooth surgery and that the Lord's will be done in baby Stellan.

Julie said...

Praying for little Stellan. I pray for a turning point.

amy said...

praying!!! I checked and there is a facebook group for Stellan. :)

Juliet said...

Angie I love your blog and have become an addict. I also am praying for Stellan non-stop and for Jennifer as well. There is a facebook group, you can go here to join: http://followthejoyfuljourney.blogspot.com/2009/03/stellans-facebook-prayer-group.html

Praying praying Praying!

Kendra said...

This Sunday is headed to her knees...Lord be near...

Elisabeth said...

i'm following her too...have been for quite some time. i have been praying since he went in the hospital, and i won't stop til we get an answer. i love jennifer & her honesty, and i love you, angie, for being such a good friend to her. i work very long hours right now (accountant + tax season = stress), but i pray all throughout my day. for some reason the other day, i felt compelled to play my selah selections on my iPod while working & praying for sweet stellan. i'll do it again today...it just makes the connection for me. nothing mystical, but we're all in the family of God, and the music reminds me of that.

Teach Me to Be Still said...

Praying for Stellan right now. Praying the drs. will listen to Jennifer and be sensitive what Stellan needs NOW. Parents often have to research and advocate for their children in this type of situation. (I mean no offense to anyone in the medical field--they have a tough job with so many opinions and options to consider). But I agree that Jennifer has to advocate for Stellan--Lord give her wisdom and strength! Check out http://mastomama.blogspot.com/ for another GREAT mom pursuing the best for her sick, sick children.

Soooo thankful the Lord is there with Stellan, watching over him and giving Jennifer courage and strength.

For you have been my hope, O Sovereign Lord, my confidence since my youth. ~Psalm 71:5

Blessings-
Laurie :-)

Lady-in-the-Making said...

I love you, Angie. :)

Heather said...

Still praying!

CIRCLE OF LIFE said...

amen sister angie you are a greta friend i pray for stellan and jennifer . i pray trhat this works and can understand her frustration and be there by her side through it . no one can elabrate this scence of felling cause they are not in this mess and i just pray strengtha nd wisdonm for this family. amen .

Brightfish said...

Thank you for the updates. It's hard not knowing what's going on (work blocks Twitter) and I don't feel she should be worrying about updating her blog. So I appreciated seeing this and will continue praying. -Sunny

Jess :) said...

I'm PRAYING and have been. :) It has been so nice hearing from Jennifer via email, as well. I just feel better when I hear from her.

Anyways, I saw that someone had asked about a Facebook Prayer Group. I also set that up and the link can be found on the Prayer Blog page:
http://www.prayingformckmuffin.blogspot.com/

You can try this direct link to Facebook, but since I'm at work, it's blocked for me, but I'm taking this directly from the Prayer Blog:
http://www.facebook.com/group.php?gid=59835278532

Hope that helps!!

Love,
Jess :)

Alison said...

Thanks for the updates! I am praying for sweet Stellan! I am fully expecting a miracle.

James' Full House said...

I've had Stellan on my heart 24/7. I wake up in the middle of the night and pray, I fall asleep praying, I wake up praying. I know God hears our cries, but this is so hard to stand back and watch. So I will continue to pray, that is all I know to do.

Psalm 143:1
Hear my prayer, O Lord;listen to my plea!Answer me because you are faithful and righteous.

Brandi

Praying for Stellan said...

Sorry,

Just saw that others had responded about the various Groups for Stellan. :)

If anyone has troubles with either his Prayer Blog or Facebook Group...just let me know and I'll take care of it!

Thanks and many blessings to you ALL!!

Love you, Ang

Jenny said...

Thanks for the updates!!
Praying...

Jess :) said...

Oh, goodness!! I've got too many blogs open. Again, I apologize, I was signed into Stellan's blog, instead of my own.

Therefore, if you need help...click on MY name and get in touch with me that way!!

:)

Melissa Irwin said...

Already been there today and am praying for Stellan, Jennifer, the Doctors and Nurses. I imagine us all on each others shoulders lifting up baby Stellan and we have broken through the clouds. Jesus hears.

Michal Ann said...

I am praying with a full heart for each member of the team, for harmony and clarity in decision making and great skill in implementing the miracles yet to come. Each detail is in God's hands. I'm so thankful for diligent medical personnel and a smart, strong MckMamma to advocate for "our" precious Stellan.

May his extremities get full blood flow RIGHT NOW! May the enemy's harassment be blocked COMPLETELY by the power of God in Christ Jesus! Holy Spirit, blow Your breath of abundant life into each one, bringing sweet strength and peace!

In Jesus' Name, Michal Ann

Pam D said...

Praying for God's fingerprints to be completely visible in every moment and every detail of all that Stellan is going through right now. Wisdom, mercy, grace, peace... may they all abound...

mccoy5 said...

praying!

Stephanie said...

Thanks for the update Angie. The firewalls at my office block the Twitter updates on her sidebar. I knew from this morning that treatment options might be changing.

I'll be praying!

Stephanie
Central, Arkansas

Amanda KP said...

thanks for the update!!!

Donnetta said...

Continuing to pray for sweet Stellan. This has been an incredibly difficult week for them, and Jennifer is handling it with her usual grace.

Brittany said...

Praying.

Steph said...

Nah, they don't give out those honorary MDs to us moms who have dealt with this kind of thing before... then they'd have to double our pay! :)

Christy said...

I have been praying for Stellan since I first heard he was going to the hospital. What a heart ache, but knowing all the while our heavenly father HOLDS HIM in HIS HANDS... it's the hardest thing to see our children go through pain and sickness. I will continue to pray for Stellan and his family.

Judy said...

Oh I've been praying! I can hardly handle just reading what that poor baby has been through and I'm not even there! May Jesus bring healing to Stellan's little body, wisdom & agreement to the doctors and peace to Jennifer!
Thanks for keeping everyone focused on this sweet boy Angie!

Megan said...

Thanks for the updates. I really haven't been able to think or do too much else other than check for updates or pray. Praying for wisdom for all involved.

Blessings~

mandie said...

praying for baby stellan!

JD said...

I agree wholeheartedly, Angie... Honorary MD, and a PhD in being a wonderful, Christian example for all of us.

Dirtying my knees in Canada...

The Cohen's said...

Praying for this angel baby, his parents and the wisdom for the doctors! I could not even imagine going through this. I keep checking your blog for updates, so prayers are going that way!

MJMILLS said...

yES IM PRAYING FOR THE LIL FELLOW...IVE BEEN ANTICIPATING EACH OF HER TWITTERS TO SEE HOW HE IS DOING! GOD IS GOOD

Joy said...

Praying........

Nicole said...

I have Baby Stellan in my thoughts and praying ardently for him, his mother and his doctors.

Laura said...

I am praying harder than I have ever ever done before. I just read Stellan has gone into V-Tach! Praying that he comes out of it quickly and that his heart gets into a normal rhythm. Praying for protection of that little boy, praying for his heart to recover, praying for Jennifer and to give her the strength she needs right now, not only to make the right decisions for her son, but to be able to just get through this emotionally and physically draining time. Praying for the doctors to have the wisdom to treat Stellan and bring him out of this into safety. Praying on my knees Angie! Head hitting the floor!

Lindsay said...

Angie,

Thanks for posting these updates and verses for prayer. I have been following and praying the best I know how, but I don't know the bible well and it helps me to be able to pray the verses you suggest. I'm on my knees for him again after reading her most recent twitter.

Rebecca Louise. said...

She deserves the biggest trophy in the world after going through this! :( xxx.

Jaci said...

I have been following her blog and praying for Stellan!

The Harper Family said...

Continuing to go to the mighty throne of God for sweet baby Stellan!

Skunkfeathers said...

I'll add a prayer for Stellan; there's always room for one more prayer.

Jenny said...

Continuing to pray.

Stars in the sky said...

Praying her in WA.

My sweet 9 year old son (Who happens to have special needs) just got on his hands and knees, bowed his head and we prayed for Baby Stellan, his family and the Drs.
Amazing to see my son, a child, pray this way.
May our prayers be heard, may Stellans heart be strong.

Jodi said...

Still praying here. My mother's heart aches, praying for all.

Jo said...

Angie - Thanks for your updates on Baby Stellan here. I have been reading Jennifer's blog around the clock, checking in on Twitter (she's the only one I follow as of yet!) hourly, and today - I am deeply praying for this little guy. I am relieved to see them taking another action; it was starting to get difficult to read, the indecisiveness, almost - I could really feel for Jennifer as a fellow Mama. I am also glad they are getting a second opinion. Anything to empower them - anything. I am praying as well for Stellan's doctors, as they need to come up with an answer to his SVT...

Megan @ Hold it Up to the Light said...

Praying still....

Joanne said...

Praying for this beautiful baby and his parents. Central lines are wonderful for meds that are very strong. They do not "go bad" like a regular IV does.

Alyson said...

Still praying. Thanks for the additional updates, Angie.

Jo Lynn said...

I have been praying for baby Stellan and Jen since she was pregnant last year. Now praying very fervently this past week. I always wander though if she reads my comments or not. I would like to ask her a few camera questions and such when everything calms down and she and Stellan are back home. Please let her know there is a prayer circle in Central PA just for them. {{{HUGS}}}

Jo Lynn

BoufMom9 said...

Praying, praying, praying...

Debra said...

Trust me...a Central Line is the way to go. I know it sounds scary, but it will save little Stellan from having to be poked as much... IV's only last so long. My daughter had a liver transplant at 7 months old and in the beginning, each hospital stay, they would use up all of her veins. One time they even had to draw blood out of a vein in her forehead....so I was very relieved when they put in the Central Line. MY HEART GOES OUT TO LITTLE STELLAN AND HIS PARENTS and I am praying for them!!!

CRUSTYBEEF said...

all of these darling precious G-d given gifts that are so innocent and are having to learn so young how to fight..my prayers are with them all. Thanks for your post..
If I could hug Jennifer and take some of the pain away I would.
anyone for that matter.

The Stain Family said...

praying, praying, praying...

Lynn said...

These words are so very special and full of comfort! Praying in Seattle!
John 14:1-3 Let not your heart be troubled: ye believe in God, believe also in me. In my Father's house are many mansions: if it were not so, I would have told you. I go to prepare a place for you. And if I go and prepare a place for you, I will come again, and receive you unto myself; that where I am, there ye may be also.
Prayer Bears
My email address

Donna said...

I, too, have been following her for a while and praying that Stellan can come out of this. I've never been one to run to the computer more than once a day, but the last couple of days has me checking her "twitter" often. You are a wonderfully supportive friend that she need right now!

Fran said...

I'm following her updates on twitter Angie. Praying alongside you and everyone else. I'm so grateful she has you.

hugs,
Fran

TammyIsBlessed said...

It sounds like things have taking a turn for the better - will continue to pray for baby Stellan!

CastingCares said...

Dear Angie,
I can't figure out how to send you a message without commenting on your last blog entry. I found your blog tonight through Jonah and Stellan's blogs. I have spent several hours reading about your past year. The name of your blog is the ringer on my cell phone. My husband has often joked that he is going to change it since we have had plenty of rain since he put it on there. It is funny to remember that the day he gave me that ringer, we were sitting in a birthing center waiting on the arrival of our third child. That was not a rainy day, but a day of great joy and blessing.

My husband is the pastor of a small church and the founding pastor told us he was leaving the night before our son arrived. Much hurt came from his announcement. Many in the church were also hurt, and much of that hurt was taken out on us by people who were angry. Besides all that went on at the church, we also lost one of my husband's brothers to esophogeal cancer last year. I have spent many of the last months focused on my hurt and unable to move forward. I have just felt stuck. Your blog has brought so much encouragement to me tonight.

Thanks for reminding me of our Father's great love. I am so sorry for the loss of your daughter on this earth. She is so very beautiful.

Rachael Black said...

My heart goes out to Jennifer. I have gone through a similar illness with my dearest friend and her daughter. I'm adding Jennifer and her Stellan to my prayer chain.

RZ said...

I have been praying like crazy and have added Stellan and Jennifer to every prayer group/list/ring I can find. I haven't heard an update in the last 15 hours, so I am anxious for some good news!!

I would like to ask your wonderful readers if they would please pray for my friend's baby, Nicholas. He is in the hospital with a 0 white blood cell count and facing the possibility of leukemia. Mom is really scared and wants her baby boy surrounded by a wall of positive energy and prayers. I'll be posting it on my blog if anyone wants to stop by! Nicholas is 6 months old

Jessica said...

Praying for baby Stellan!
My heart goes out!!
"PRESS ON" in prayer...
Our God is an Awesome God!

Tiffany and Javier said...

I am not sure if you read all of your comments, because there are so many. But I pray you read this one. There is a young lady in the 6th grade where I teach. She has neuroblastoma and is not doing well. In fact, we had a prep meeting on Friday for the inevitable devistation of the school. I know most of the prayers here come for babies, but her parents, friends and family need the power of the masses. I don't have her in class, I don't know her well, but like everyone that meets her, I cant not smile when she looks my way. She is an inspiration because she really lives life and doesn't ever show her pain. I'm asking for you and your audience's help with this one. She is deserves it.

Tiffany and Javier said...

her mom's blog is linked below - i forgot to do that in my earlier comment.

http://erinbuenger.blogspot.com/

Tricia said...

I've been praying. Do you know why her blog is down today? Her close friend's blog is down as well...

Ang said...

Hi Angie,
I will be praying for precious Stellan. Please keep us posted.

BTW I just changed my blog to private (I think) and since I follow you I don't know if you have to have an invite or not to post on mine. If you do my email is agb443@msn.com Thanks!!

Magic Brush said...

Posted about both you and Audrey and sweet baby Stellan today on my blog today. I pray you are well and am laying the MckMama family at the feet of our Lord. Praying for a miracle.

In my 2nd Beth Moore bible study by the way. And I've recently purchased decent jeans for thefirst time in my life. Hope I've done you proud! =)

Bless you.

Anna said...

Still praying for Stellan...I know this is so hard on Jennifer! May God give her strength.

On another note, just read Greg's latest post, over at Light Your World, and could not be more THRILLED for he, Nicol, and Summer!!!!

Mommyof3 said...

Praying for Stellan always.
Praying for your family also.
Praying for the safe arrival of your new niece or nephew:)

Valerie

TBRKO said...

I have been following Stellan's story almost obsessively. Thank God that you are there to provide her comfort. I am sorry that you have had to go through similar anguish. Please know that I admire your strength and the strength you are giving Jennifer and Stellan.

Laura said...

I am an MD and a mommy with a child with congenital heart disease! I'll give her an honorary degree, and I dare anyone to stop me! :)

Jaycee said...

Wow. I think this might be your most awesome post yet. You have such a way with words.

I'm praying for Stellan too!

I also gave you an award on my blog because I love to read yours!